11
Mar, 14
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COMMENTS
Thomas Inge, MD, PhD

About the Author Thomas Inge, MD, PhD

Thomas Inge, MD, PhD, is the surgical director for the Surgical Weight Loss Program for Teens and the director of the Center for Bariatric Research and Innovation. He has authored or co-authored over 120 peer-reviewed publications and book chapters, mostly related to minimally-invasive surgery and pediatric obesity. He has been funded by the National Institutes of Health since 2005 to conduct clinical research related to pediatric obesity, endocrinology, and bariatric surgery.

Comments:

  1. […] have published reviews and their own unique findings on this topic. Dr. Inge recently wrote a blog post explaining exactly how this procedure can potentially help counteract the miscommunication between […]

  2. I have HyOb from a Craniopharyngioma that was removed 2 years ago and have since more than doubled my weight. I have tried diet after diet after diet and nothing has worked. I am soon going to start the Atkins diet. This article explains perfectly how I feel and how I am treated. Thank you.

    Cade Larsen - March 31, 2014 at 6:06 pm Reply
    1. What you describe is exactly what has happened to our son, Henry. He was diagnosed and had surgery for a Craniopharyngioma two years ago and has doubled his weight (75 to 150). Now at 12 years of age, we’re thinking we need to do something more substantial than just trying to watch what he eats and encouraging him to exercise. This is a difficult problem requiring an intentional, focused, organized, persistent, dedicated, and intense response. Surgery may be the only way.

      Dan Gallagher - June 16, 2014 at 10:18 am Reply
  3. I also have been Dx with HyOB after I had brain hemorrhage due to possible AVM. I was 28 yr at the time working as exercise physiologist never weighting more than 125-128lbs. In less than 6mo I was up to 180lbs starving myself even though I just wanted to eat and exercise even more than I ever did already. Still didn’t matter, I had doctor after doctor tell me it was my fault and I wasn’t exercising enough and eating right. I became severely insulin resistant. After about 2yrs I finally had a doctor tell me he thinks I had HyOB. My age was a big factor in being over looked in this process. I continue to deal with the weight on difference medications, I changed my career as I felt that impacted and hope awareness is made known especially for all these children.

    Rachel - June 18, 2014 at 10:49 pm Reply
  4. is the symptom always extreme hunger? I am not hungry or eating more but still gaining after surgery.

    cara - September 16, 2014 at 9:43 pm Reply
  5. Hi

    What does the future look like after this procedure in say 2-5 years time? Have any of the patients reviewed gained their weight back?
    I’m also wondering why this procedure is a last resort? Because if diet and exercise don’t work and to my knowledge there are no successful drugs developed yet… Wouldn’t this surgery be more beneficial from the start rather than waiting until the patient is considerably overweight? I ask because my niece is suffering from this and her weight gain is very rapid (30kg in 6 months and still rising) and the pain/pressure on her young body has increased immensely.
    Also have there been any adverse side effects with this procedure?

    Thank you
    Steph

    Stephanie Rowe - October 7, 2014 at 6:17 am Reply
  6. Hi, I gained 90 pounds very rapidly after brain surgery in 2006. Pathology came back as JPA but seems to behave like a Craniopharyngioma. Have tried for years to get the weight off through diet and exercise with personal trainers. Nothing has helped. Since I am not a pediatric patient, never had many answers. Now wondering if bariatric surgery is my only hope? Since most doctors I have seen don’t seem to recognize or understand Hypothalamic Obesity, not sure where to start or who to see. I am in the Philadelphia suburbs. Any recommendations?

    Kelli - October 19, 2014 at 12:03 am Reply
  7. My daughter was first diagnosed with a craniopharyngioma in 1996 and had a recurrence in 1997. She was 16 years old at the time of the first diagnoses. Each tumor was removed via a craniotomy, and the weight gain immediately became a battle. Now, at the age of 31, she is beginning to experience mobility issues as well as joint and back pain. We had explored the possibility of bariatric surgery a few years ago, but that was before the importance of the vagus nerve was being considered, making the results less attractive. She is once again interested in bariatric surgery, but we don’t know where to begin. We live in Montana and are willing to travel, but as yours is a children’s hospital, am I correct in assuming you do not treat adults? If so, what hospitals/doctors are most experienced in combining bariatric surgery with a partial vagotomy in adult patients?
    Thank you.
    Flora

    Flora Shultes - November 3, 2014 at 12:03 pm Reply
    1. Hello Flora – A member of Dr. Inge’s team is going to reach out to you via email with more information. She’s out of the office until later this week, but will be in touch as soon as she’s back. Thank you for reaching out! -Kate at Cincinnati Children’s

      Kate Setter - November 3, 2014 at 4:55 pm Reply
  8. My 28-year-old son was diagnosed with a pituitary adenoma and had surgery to remove it. Where could he go for treatment for the symptoms that he is now experiencing?

    Debra Wade - November 6, 2014 at 10:35 am Reply
  9. my daughter had a crainopharyngoma tumor removed 2002 has multiple endocrine problems and weight gain is a major problem every check at hospital weight gain we are doing all we can to help her with trying to loose weight reading your articles have gave me a new insight into her condition we live in Ireland is there any hospital in this part of world with an interest in this condition.I feel gastric surgery with vagotomy is a positive option for my daughter.

    Mary Lennom - November 20, 2014 at 4:45 am Reply
  10. my brother was recently diagnosed with what Drs. Believe to be a “benign” tumor on the Pituitary Gland.
    He is scheduled for surgery after Christmas.
    Is this obesity problem an issue in this kind of surgical intervention?

    Suzanne Reisman - December 14, 2014 at 9:05 am Reply
  11. Dr. Inge,
    I would like to know if you believe this could help a patient ten years out from crainopharygnoma surgery. Our daughter was diagnosed and had surgical removal of the tumor and has struggled with multiple issues since. She is now considered morbidly obese and diabetic, and even with daily exercise and careful diet control, cannot lose weight. As well as damage to the pituitary, she also experienced an abscess in the left frontal lobe. We live in Texas, and have aged out of Cook Children’s Medical program, and she now receives treatment with a neurologist and endocrinologist in Tyler. We would appreciate any recommendations you could share.

    Beth Sullivan - December 14, 2014 at 9:01 pm Reply
  12. My daughter is 31, and now weighs around 350 lbs. What is happening to her seems similar to HyOb. Any assistance you can offer would be greatly appreciated. She lives in Phoenix, Arizona.

    Amanda - December 16, 2014 at 11:22 am Reply
  13. Hello,

    My son had a crainopharyngoma tumor removed 11 years ago, he also had a gastric bypass. He is 41yrs old and is obese… my heart breaks for him and feel I feel helpless. I worry about heart attack or stroke… we leave in Pennsylvania… Is there no new treatments available. He has not had his vagus removed… would that be his only option. Is ther any clinical trials in this area of obesity?

    Feeling helpless…
    Marian

    Marian DeRosa - May 1, 2015 at 1:13 pm Reply
    1. Hi Marian,

      I reached out to Dr. Inge and he said that he’s not aware of any studies of this type at this point. He suggests your son contact his primary care doctor or an endocrinologist, as there are weight loss medications for adults that may be worth exploring.

      Rachel Camper - May 4, 2015 at 9:03 am Reply
  14. I have a 23 year old son who was born with Hydrocephalus and has had 3 shunt revisions since birth. During his yearly MRI in 1999 a tumor near the Hypothalamus, Pituitary and Optic Nerve was detected, monitoring it yearly with the MRI’s. At the end of 2002 after having symptoms and detecting during the MRI he had a Chiari Malformation. After this surgery his seizures and SVT’s increased, after a Gran Mal Seizures his physicians decided it was time to remove the tumor. By the time all the pre-test were complete they removed the tumor in 2003. We were told they were unable to remove all of it to prevent damaging the Hypothalamus any more than they had. They treated the remainder with Gama Knife radiation. After these procedures He began gaining excessive weight. We were were told he had quit producing Growth Hormone so he began replacement treatments, he continued gaining weight. After aging out of the children’s hospital his new doctor discontinued the treatments, causing even more weight gain. He works out at the fitness center every day but can not loose and even wakes up in the middle of the night just to eat. We live in Oklahoma City, his primary physician monitors him we are all searching for any help! I have just added him to your registry. My husband and I are determined not to give up to finding him help. Do you know of any physicians with knowledge of this condition near us? Any guidance is appreciated.

    Tracy Clifford - May 12, 2015 at 12:27 am Reply
    1. Hi Tracy,

      I reached out to Dr. Inge and he is not familiar with the providers in Oklahoma. He recommends your son start with his local doctor who may be able to suggest a specialist in your area.

      Rachel Camper - May 18, 2015 at 8:43 am Reply

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