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Aug, 13
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COMMENTS
Kenneth Goldschneider, MD, FAAP

About the Author Kenneth Goldschneider, MD, FAAP

Kenneth Goldschneider, MD, FAAP, is director of the Pain Management Center and is a leading expert in treating complex chronic pain conditions in infants, children and young adults.

Comments:

  1. Is anyone aware of a doctor, or clinic, or PT or OT who treats EDS in New York City or Long Island? My teenage daughter has EDS and it causes pain in most parts of her body, including her hands. She has been unable to write for 18 months, so that area is a priority for her. I appreciate it.

    Mike - September 26, 2014 at 1:43 pm Reply
  2. My 6 year old son was just diagnosed with type 3 EDS. I am looking for physicians that work with pediatric EDS patients in the San Diego area. Thanks for your help.

    Emmanuel Hunter - October 2, 2014 at 9:41 pm Reply
  3. So glad to see someone talking about a pain. I went to med school at UAB and trained at Mayo Clinic. Had to give up my practice finally due to EDS with multiple complications including spinal disease, migraines with micro infarcts, GI dysmotility, autonomic instability, etc. autoimmune arthritis, and narcolepsy among other problems. I made it 40 years without taking daily pain meds. I have and continue all other modalities you list for pain control. but it gets to the point where not taking pain medication daily is impossible. I know you are referring to kids. If I had had any sympathy or assistance or recognition of disease from anyone when I was younger it would have made living with this so much easier so I applaud you. Currently, most states are experiencing hysteria regarding use of pain medication even in clearly appropriate situations. In west TN where I live, it has become impossible to get appropriate care. Parents who have a child with EDS in pain. please look into your child’s future and know that if you want them to be able to have any relief from severe constant pain. you need to get involved in the fight to keep pain medication available for those without cancer who legitimately need it, can prove they haven’t and won’t abuse it, and follow all the rules. The other meds: antidepressants. anti-epileptics, etc., have serious side effects for many and don’t relieve pain at all for many but because they are not considered habit-forming, they are all that is likely to be offered. People in severe pain don’t get high from opiates, they just have less pain. Please excuse bad typing and grammar as sending this message is a real stretch for me. Thanks all and best!

    Holly - October 14, 2014 at 6:10 pm Reply

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